Demographics (15)
- Age - Subject's age at sampling (phv00024161.v1.p1)
- Age - Subject's age at sampling (phv00024102.v1.p1)
- Age_At_Diagnosis - Subject's age at time of diagnosis in years, or the month and year the subject was born. (phv00024106.v1.p1)
- age_at_symptom_onset - Age at symptom onset (phv00158873.v1.p1)
- age_at_symptom_onset - Age at symptom onset (phv00088182.v1.p1)
- age_onset - Disease onset age (phv00200475.v1.p1)
- age_onset - Disease onset age (phv00393515.v1.p1)
- Gender - Subject's gender (phv00024162.v1.p1)
- Gender - Subject's gender (phv00024103.v1.p1)
- Onset_Age - The age at which the subjects themselves first noted symptoms of ALS, based on clinician's interview. (phv00024107.v1.p1)
- sex - Gender of participant (phv00158872.v1.p1)
- sex - Gender of participant (phv00088181.v1.p1)
- sex - Gender of participant (phv00200477.v1.p1)
- sex - Gender of participant (phv00393516.v1.p1)
- SEX - Sex (phv00200471.v1.p1)
Disease Events (68)
- amyotrophic_lateral_sclerosis - Amyotrophic lateral sclerosis status (phv00158877.v1.p1)
- amyotrophic_lateral_sclerosis - Amyotrophic lateral sclerosis status (phv00088184.v1.p1)
- Family History:ALS/other MND - 'Present' means that the individual subject indicates during clinician's interview that he/she has a blood relative who is known to have a history or diagnosis of ALS. 'Absent' means that he/she does not have a known blood relative with this disorder. If present, the clinician is to determine which blood relatives have this disorder and their relationship to the proband. (phv00024117.v1.p1)
- Family History:Alzheimer's disease - 'Present' means that the individual subject indicates during clinician's interview that he/she has a blood relative who is known to have a history or diagnosis of Alzheimer's disease. 'Absent' means that he/she does not have a known blood relative with this disorder. If present, the clinician is to determine which blood relatives have this disorder and their relationship to the proband. (phv00024118.v1.p1)
- Family History:Amyotrophic lateral sclerosis - The presence or absence of amyotrophic lateral sclerosis in the subject's blood relatives as determined by clinician's interview. (phv00024170.v1.p1)
- Family History:Ataxia - The presence or absence of ataxia in the subject's blood relatives as determined by clinician's interview. (phv00024171.v1.p1)
- Family History:Autism - The presence or absence of autism in the subject's blood relatives as determined by clinician's interview. (phv00024172.v1.p1)
- Family History:Bipolar (manic-depressive) - The presence or absence of bipolar disorder in the subject's blood relatives as determined by clinician's interview. (phv00024173.v1.p1)
- Family History:Brain aneurysm - The presence or absence of brain aneurysm in the subject's blood relatives as determined by clinician's interview. (phv00024174.v1.p1)
- Family History:Cancer - The presence or absence of cancer in the subject's blood relatives as determined by clinician's interview. (phv00024175.v1.p1)
- Family History:Dementia - The presence or absence of dementia in the subject's blood relatives as determined by clinician's interview. (phv00024176.v1.p1)
- Family History:Depression - The presence or absence of depression in the subject's blood relatives as determined by clinician's interview. (phv00024177.v1.p1)
- Family History:Diabetes - The presence or absence of diabetes in the subject's blood relatives as determined by clinician's interview. (phv00024178.v1.p1)
- Family History:Dystonia - The presence or absence of dystonia in the subject's blood relatives as determined by clinician's interview. (phv00024179.v1.p1)
- Family History:Epilepsy - The presence or absence of epilepsy in the subject's blood relatives as determined by clinician's interview. (phv00024180.v1.p1)
- Family History:Heart disease - The presence or absence of heart disease in the subject's blood relatives as determined by clinician's interview. (phv00024181.v1.p1)
- Family History:Hypertension - The presence or absence of hypertension in the subject's blood relatives as determined by clinician's interview. (phv00024182.v1.p1)
- Family History:memory loss - The presence or absence of memory loss in the subject's blood relatives as determined by clinician's interview. (phv00024183.v1.p1)
- Family History:Migraine - The presence or absence of migraine in the subject's blood relatives as determined by clinician's interview. (phv00024184.v1.p1)
- Family History:Multiple sclerosis - The presence or absence of multiple sclerosis in the subject's blood relatives as determined by clinician's interview (phv00024185.v1.p1)
- Family History:Muscle disease - The presence or absence of any type of muscle disease in the subject's blood relatives as determined by clinician's interview. (phv00024186.v1.p1)
- Family History:Obsessive Compulsive - The presence or absence of obsessive compulsive disorder in the subject's blood relatives as determined by clinician's interview. (phv00024187.v1.p1)
- Family History:Other dementia - 'Present' means that the individual subject indicates during clinician's interview that he/she has a blood relative who is known to have a history or diagnosis of dementia. 'Absent' means that he/she does not have a known blood relative with this disorder. If present, the clinician is to determine which blood relatives have this disorder and their relationship to the proband. (phv00024119.v1.p1)
- Family History:Other neurodegenerative disease - 'Present' means that the individual subject indicates during clinician's interview that he/she has a blood relative who is known to have a history or diagnosis of another neurodegenerative disease. 'Absent' means that he/she does not have a known blood relative with any other neurodegenerative disease. If present, the clinician is to determine which blood relatives have a neurodegenerative disease and their relationship to the proband. (phv00024120.v1.p1)
- Family History:Parkinson's - The presence or absence of Parkinson's disease in the subject's blood relatives as determined by clinician's interview. (phv00024189.v1.p1)
- Family History:Parkinson's disease - 'Present' means that the individual subject indicates during clinician's interview that he/she has a blood relative who is known to have a history or diagnosis of Parkinson's disease. 'Absent' means that he/she does not have a known blood relative with this disorder. If present, the clinician is to determine which blood relatives have this disorder and their relationship to the proband. (phv00024121.v1.p1)
- Family History:Schizophrenia - The presence or absence of schizophrenia in the subject's blood relatives as determined by clinician's interview. (phv00024190.v1.p1)
- Family History:Stroke - The presence or absence of cerebrovascular disease in the subject's blood relatives as determined by clinician's interview. (phv00024191.v1.p1)
- Family History:Suicide/Attempt - The presence or absence of a suicide attempt in the subject's blood relatives as determined by clinician's interview. (phv00024192.v1.p1)
- Family History:Tourettes - The presence or absence of Tourette's syndrome in the subject's blood relatives as determined by clinician's interview. (phv00024193.v1.p1)
- Medical History:Alzheimer's disease - 'Present' means that the individual subject indicates during clinician's interview that there is a medical history of Alzheimer's disease. 'Absent' means that the subject does not have a medical history of the disease. (phv00024125.v1.p1)
- Medical History:Amyotrophic lateral sclerosis - The presence or absence of amyotrophic lateral sclerosis in the subjects themselves as determined by clinician's interview. (phv00024195.v1.p1)
- Medical History:Ataxia - The presence or absence of ataxia in the subjects themselves as determined by clinician's interview. (phv00024196.v1.p1)
- Medical History:Ataxia - 'Present' means that the individual subject indicates during clinician's interview that there is a medical history of ataxia. 'Absent' means that the subject does not have a medical history of the disease. (phv00024126.v1.p1)
- Medical History:Autism - The presence or absence of autism in the subjects themselves as determined by clinician's interview. (phv00024197.v1.p1)
- Medical History:Autism - 'Present' means that the individual subject indicates during clinician's interview that there is a medical history of autism. 'Absent' means that the subject does not have a medical history of the disease. (phv00024127.v1.p1)
- Medical History:Bipolar (manic-depressive) - The presence or absence of bipolar disorder in the subjects themselves as determined by clinician's interview. (phv00024198.v1.p1)
- Medical History:Brain aneurysm - The presence or absence of brain aneurysm in the subjects themselves as determined by clinician's interview. (phv00024199.v1.p1)
- Medical History:Brain aneurysm - 'Present' means that the individual subject indicates during clinician's interview that there is a medical history of brain aneurysm. 'Absent' means that the subject does not have a medical history of the disorder. (phv00024129.v1.p1)
- Medical History:Cancer - The presence or absence of cancer in the subjects themselves as determined by clinician's interview. (phv00024200.v1.p1)
- Medical History:Cancer - 'Present' means that the individual subject indicates during clinician's interview that there is a medical history of cancer. 'Absent' means that the subject does not have a medical history of the disorder. (phv00024130.v1.p1)
- Medical History:Dementia - The presence or absence of dementia in the subjects themselves as determined by clinician's interview. (phv00024201.v1.p1)
- Medical History:Dementia - 'Present' means that the individual subject indicates during clinician's interview that there is a medical history of dementia. 'Absent' means that the subject does not have a medical history of the disorder. (phv00024131.v1.p1)
- Medical History:Depression - The presence or absence of depression in the subjects themselves as determined by clinician's interview. (phv00024202.v1.p1)
- Medical History:Diabetes - The presence or absence of diabetes in the subjects themselves as determined by clinician's interview. (phv00024203.v1.p1)
- Medical History:Diabetes - 'Present' means that the individual subject indicates during clinician's interview that there is a medical history of diabetes. 'Absent' means that the subject does not have a medical history of the disorder. (phv00024133.v1.p1)
- Medical History:Dystonia - The presence or absence of dystonia in the subjects themselves as determined by clinician's interview (phv00024204.v1.p1)
- Medical History:Dystonia - 'Present' means that the individual subject indicates during clinician's interview that there is a medical history of dystonia. 'Absent' means that the subject does not have a medical history of the disorder. (phv00024134.v1.p1)
- Medical History:Epilepsy - The presence or absence of epilepsy in the subjects themselves as determined by clinician's interview. (phv00024205.v1.p1)
- Medical History:Epilepsy - 'Present' means that the individual subject indicates during clinician's interview that there is a medical history of epilepsy. 'Absent' means that the subject does not have a medical history of the disorder. (phv00024135.v1.p1)
- Medical History:Heart disease - The presence or absence of heart disease in the subjects themselves as determined by clinician's interview. (phv00024206.v1.p1)
- Medical History:Heart disease - 'Present' means that the individual subject indicates during clinician's interview that there is a medical history of heart disease. 'Absent' means that the subject does not have a medical history of the disorder. (phv00024136.v1.p1)
- Medical History:Hypertension - The presence or absence of hypertension in the subjects themselves as determined by clinician's interview. (phv00024207.v1.p1)
- Medical History:Hypertension - 'Present' means that the individual subject indicates during clinician's interview that there is a medical history of hypertension. 'Absent' means that the subject does not have a medical history of the disorder. (phv00024137.v1.p1)
- Medical History:memory loss - The presence or absence of memory loss in the subjects themselves as determined by clinician's interview. (phv00024208.v1.p1)
- Medical History:Migraine - The presence or absence of migraine in the subjects themselves as determined by clinician's interview. (phv00024209.v1.p1)
- Medical History:Multiple sclerosis - The presence or absence of multiple sclerosis in the subjects themselves as determined by clinician's interview. (phv00024210.v1.p1)
- Medical History:Multiple sclerosis - 'Present' means that the individual subject indicates during clinician's interview that there is a medical history of multiple sclerosis. 'Absent' means that the subject does not have a medical history of the disorder. (phv00024138.v1.p1)
- Medical History:Muscle disease - The presence or absence of muscle disease in the subjects themselves as determined by clinician's interview; if present, the clinical interview will describe the type of muscle disease and thus may capture disorders that result in weakness, but are not considered to be a disease of the muscle. (phv00024211.v1.p1)
- Medical History:Muscle disease - 'Present' means that the individual subject indicates during clinician's interview that there is a medical history of muscle disease. 'Absent' means that the subject does not have a medical history of the disorder. (phv00024139.v1.p1)
- Medical History:Obsessive Compulsive - The presence or absence of obsessive compulsive disorder in the subjects themselves as determined by clinician's interview. (phv00024212.v1.p1)
- Medical History:Parkinson's - The presence or absence of Parkinson's disease in the subjects themselves as determined by clinician's interview. (phv00024214.v1.p1)
- Medical History:Parkinson's - 'Present' means that the individual subject indicates during clinician's interview that there is a medical history of Parkinson's disease. 'Absent' means that the subject does not have a medical history of the disorder. (phv00024140.v1.p1)
- Medical History:Schizophrenia - The presence or absence of schizophrenia in the subjects themselves as determined by clinician's interview. (phv00024215.v1.p1)
- Medical History:Stroke - The presence or absence of cerebrovascular disease in the subjects themselves as determined by clinician's interview. (phv00024216.v1.p1)
- Medical History:Stroke - 'Present' means that the individual subject indicates during clinician's interview that there is a medical history of stroke. 'Absent' means that the subject does not have a medical history of the disorder. (phv00024142.v1.p1)
- Medical History:Suicide/Attempt - The subjects themselves indicate a past suicide attempt as determined by clinician's interview. (phv00024217.v1.p1)
- Medical History:Tourettes - The presence or absence of Tourette's syndrome in the subjects themselves as determined by clinician's interview. (phv00024218.v1.p1)
General Health (1)
- Optional data:Handedness - The subject has a hand preference (left, right), or uses both hands equally well (ambidextrous). (phv00024219.v1.p1)
Mental Health (5)
- Medical History:Bipolar (manic-depressive) - 'Present' means that the individual subject indicates during clinician's interview that there is a medical history of bipolar disorder. 'Absent' means that the subject does not have a medical history of the disorder. (phv00024128.v1.p1)
- Medical History:Depression - 'Present' means that the individual subject indicates during clinician's interview that there is a medical history of depression. 'Absent' means that the subject does not have a medical history of the disorder. (phv00024132.v1.p1)
- Medical History:Schizophrenia - 'Present' means that the individual subject indicates during clinician's interview that there is a medical history of schizophrenia. 'Absent' means that the subject does not have a medical history of the disorder. (phv00024141.v1.p1)
- Medical History:Suicide/Attempt - 'Present' means that the individual subject indicates during clinician's interview that there is a medical history of attempted suicide. 'Absent' means that the subject does not have a medical history of attempted suicide. (phv00024143.v1.p1)
- Optional data:MMSE (enter score and date) - The score obtained in the Folstein Mini Mental Status examination. (phv00024220.v1.p1)
Race and Ethnicity (10)
- ethnicity - Ethnicity of participant (phv00158871.v1.p1)
- ethnicity - Ethnicity of participant (phv00088180.v1.p1)
- ethnicity - Ethnicity of participant (phv00200479.v1.p1)
- Ethnicity - Ethnic category (as reported by subject) - check one: Hispanic or Latino, Not Hispanic or Latino (phv00024164.v1.p1)
- Ethnicity - Ethnic category (as reported by subject) - check one: Hispanic or Latino, Not Hispanic or Latino (phv00024105.v1.p1)
- race - Race of participant (phv00158870.v1.p1)
- race - Race of participant (phv00088179.v1.p1)
- race - Race of participant (phv00200478.v1.p1)
- Race - Subject's race (phv00024163.v1.p1)
- Race - Subject's race (phv00024104.v1.p1)
Substance Use (1)
- Optional data:years smoking - How many years did the person smoke ( if the person is a current or former smoker)? (phv00024223.v1.p1)
Other (81)
- AFFECTION_STATUS - Case - control status of the subject (phv00088189.v4.p1)
- ALS_type - Type of ALS of participant (phv00200481.v1.p1)
- ALS_type - Type of ALS of diagnosed (phv00393518.v1.p1)
- ANALYTE_TYPE - Analyte Type (phv00200485.v2.p1)
- Atypical Features of ALS/MND:Atypical features of ALS/MND - The clinician indicates, in the checkbox, if he/she observes other atypical features (i.e. sensory, autonomic, cerebellar, cognitive, Parkinsonian, sphincter, ocular, other) not normally associated with ALS. (phv00024112.v1.p1)
- birthplace - Birthplace of participant (phv00158869.v1.p1)
- birthplace - Birthplace of participant (phv00088178.v1.p1)
- birthplace - Place of subject's birth (phv00200476.v1.p1)
- birthplace - Place of subject's birth (phv00393519.v1.p1)
- BODY_SITE - Body site where sample was collected (phv00200484.v2.p1)
- C9orf72_status - Pathogenic repeat expansion of C9orf72 (Entrez GeneID: <a href="http://www.ncbi.nlm.nih.gov/gene/?term=203228">203228</a>)? (phv00200482.v1.p1)
- case_control - Case or control? (phv00158868.v1.p1)
- case_control - Case or control? (phv00088177.v1.p1)
- Catalog_ID - Subject ID number assigned by NINDS Repository (phv00024159.v1.p1)
- Catalog_ID - Subject ID number assigned by NINDS Repository (phv00024100.v1.p1)
- censor_status - Censor status of patient for survival analysis (phv00158876.v1.p1)
- Clinical_Data_Source - The source of the clinical data (phv00024165.v1.p1)
- Clinical_Data_Source - The source of the clinical data (phv00024108.v1.p1)
- Clinician_Type - Type of clinician who collected the clinical data (phv00024166.v1.p1)
- Clinician_Type - Type of clinician who collected the clinical data (phv00024109.v1.p1)
- CONSENT - Consent group as determined by DAC (phv00088186.v4.p1)
- Country_Origin - Subject's country of birth (phv00024167.v1.p1)
- Country_Origin - Subject's country of birth (phv00024110.v1.p1)
- Data collected by:This data was collected by - Defines category of person who completed the form. (phv00024169.v1.p1)
- diagnosis - Diagnosis (phv00393514.v1.p1)
- EMG Studies:Bulbar - The clinician indicates if 'acute' or 'chronic' denervation, or 'acute' and 'chronic' denervation, or 'no denervation' is present in the bulbar regions of the body. If the region was not examined, the clinician indicates 'not tested'. (phv00024113.v1.p1)
- EMG Studies:Cervical/upper limbs - The clinician indicates if 'acute' or 'chronic' denervation, or 'acute' and 'chronic' denervation, or 'no denervation' is present in the cervical region of the body. If the region was not examined, the clinician indicates 'not tested'. (phv00024114.v1.p1)
- EMG Studies:Lumbosacral/lower limbs - The clinician indicates if 'acute' or 'chronic' denervation, or 'acute' and 'chronic' denervation, or 'no denervation' is present in the lumbo-sacral region of the body. If the region was not examined, the clinician indicates 'not tested'. (phv00024115.v1.p1)
- EMG Studies:Thoracic/chest - The clinician indicates if 'acute' or 'chronic' denervation, or 'acute' and 'chronic' denervation, or 'no denervation' is present in the thoracic region of the body. If the region was not examined, the clinician indicates 'not tested'. (phv00024116.v1.p1)
- Family History:Other - The clinician interviewing the subject asks about any other known medical illnesses in blood relatives and notes them as comments if they exist. (phv00024188.v1.p1)
- FAMILY_ID - Family ID (phv00200467.v1.p1)
- FATHER - Father's Subject ID (phv00200469.v1.p1)
- Genetics:Other mutation - The clinician indicates if testing for any genetic mutation predisposing the subject to ALS was done; if so, were any gene mutations present or not? (phv00024122.v1.p1)
- Genetics:SOD-1 mutation - The clinician indicates if the subject underwent genetic testing for a SOD-1 mutation. If tests were completed, was a gene mutation present or not? (phv00024123.v1.p1)
- In_Panel - Indicates whether DNA of this subject is included in any panels available through the NINDS Repository catalog (phv00024160.v1.p1)
- In_Panel - Indicates whether DNA of this subject is included in any panels available through the NINDS Repository catalog. (phv00024101.v1.p1)
- Longitudinal Data: Is this data Longitudinal (Follow-Up) Data? - Is the data longitudinal or an initial assessment? (phv00024124.v1.p1)
- Longitudinal Data:Is this data Longitudinal (Follow-Up) Data? - Is the data longitudinal or an initial assessment (phv00024194.v1.p1)
- Medical History:Other - The clinician interviewing the subject asks about any other medical illnesses and notes them as comments if they exist. (phv00024213.v1.p1)
- MOTHER - Mother's Subject ID (phv00200470.v1.p1)
- Optional data:Escorial criteria - Escorial criteria: definite, probable, lab-supported probable, possible, suspected; reference: Brooks BR, Miller RG, Swash M, Munsat TL. El Escorial revisited: revised criteria for the diagnosis of amyotrophic lateral sclerosis. Amyotroph. Lateral Scler. Other Motor Neuron Disord. 2000; 1:293-299. (phv00024144.v1.p1)
- Optional data:Handedness - The hand preference of the subject; the subject's dominant hand. (phv00024145.v1.p1)
- Optional data:Neurological examination - The subject either did (yes) or did not (no) undergo a neurological examination. (phv00024221.v1.p1)
- Optional data:smoking history - Record of an individual's background with regard to smoking tobacco. This would include such factors as start date, end date (if applicable), number of cigarettes smoked, attempts to quit, and others. (phv00024222.v1.p1)
- Optional data:smoking history - A record of an individual's background with regard to smoking tobacco. This would include such factors as start date, end date (if applicable), number of cigarettes smoked, attempts to quit, and others. (phv00024146.v1.p1)
- Primary Clinical Diagnosis:Primary clinical diagnosis - The clinician indicates which type of MND the subject has by choosing one of the offered diagnoses (ALS, progressive muscular atrophy, primary lateral sclerosis, other), or by writing in the type of MND if the best diagnosis is not offered. (phv00024147.v1.p1)
- SAMPLE_ID - Sample ID (phv00088191.v4.p1)
- SAMPLE_ID - De-identified Sample ID (phv00200483.v2.p1)
- SAMPLE_SOURCE - Source repository where samples originate (phv00088192.v4.p1)
- SAMPLE_USE - Sample Use (phv00200473.v2.p1)
- Secondary Neurological Diagnosis:Secondary neurological diagnoses - The clinician indicates whether the patient has fronto-temporal dementia (or any other neurological impairment, or NA). (phv00024148.v1.p1)
- SEQUENCING_CENTER - Name of the center which conducted sequencing (phv00200486.v2.p1)
- Signs Supporting Diagnosis:Lower Motor Neuron Signs-Bulbar - The clinician indicates if and where there are 'definite', 'indeterminate', or 'absent' lower motor neuron signs in the bulbar region. If the region was not examined, the clinician indicates 'not tested'. (phv00024149.v1.p1)
- Signs Supporting Diagnosis:Lower Motor Neuron Signs-Cervical/upper limbs - The clinician indicates if and where there are 'definite', 'indeterminate', or 'absent' lower motor neuron signs in the cervical region. If the region was not examined, the clinician indicates 'not tested'. (phv00024150.v1.p1)
- Signs Supporting Diagnosis:Lower Motor Neuron Signs-Lumbosacral/lower limbs - The clinician indicates if and where there are 'definite', 'indeterminate', or 'absent' lower motor neuron signs in the lumbo-sacral region. If the region was not examined, the clinician indicates 'not tested'. (phv00024151.v1.p1)
- Signs Supporting Diagnosis:Lower Motor Neuron Signs-Thoracic/chest - The clinician indicates if and where there are 'definite', 'indeterminate', or 'absent' lower motor neuron signs in the thoracic region. If the region was not examined, the clinician indicates 'not tested'. (phv00024152.v1.p1)
- Signs Supporting Diagnosis:Upper Motor Neuron Signs-Bulbar - The clinician indicates if and where there are 'definite', 'indeterminate', or 'absent' upper motor neuron signs in the bulbar region. If the region was not examined, the clinician indicates 'not tested'. (phv00024153.v1.p1)
- Signs Supporting Diagnosis:Upper Motor Neuron Signs-Cervical/upper limbs - The clinician indicates if and where there are 'definite', 'indeterminate', or 'absent' upper motor neuron signs in the cervical region. If the region was not examined, the clinician indicates 'not tested'. (phv00024154.v1.p1)
- Signs Supporting Diagnosis:Upper Motor Neuron Signs-Lumbosacral/lower limbs - The clinician indicates if and where there are 'definite', 'indeterminate', or 'absent' upper motor neuron signs in the lumbo-sacral region. If the region was not examined, the clinician indicates 'not tested'. (phv00024155.v1.p1)
- Signs Supporting Diagnosis:Upper Motor Neuron Signs-Thoracic/chest - The clinician indicates if and where there are 'definite', 'indeterminate', or 'absent' upper motor neuron signs in the thoracic region. If the region was not examined, the clinician indicates 'not tested'. (phv00024156.v1.p1)
- Site of Symptom Onset:site of symptom onset - The clinician indicates the site of onset of the progressive weakness (i.e. bulbar, truncal, generalized, respiratory, limb). (phv00024157.v1.p1)
- site_of_symptom_onset - Site where disease symptoms started (phv00158874.v1.p1)
- site_of_symptom_onset - Site where disease symptoms started (phv00088183.v1.p1)
- site_of_symptom_onset - Site of symptom onset of participant (phv00200480.v1.p1)
- site_of_symptom_onset - Site of symptom onset in participant (phv00393517.v1.p1)
- SOURCE_SAMPLE_ID - Sample ID used in the Source Repository (phv00088193.v4.p1)
- SOURCE_SUBJECT_ID - Subject ID used in the Source Repository (phv00088188.v4.p1)
- SUBJECT_ID - De-identified Subject ID (phv00200474.v1.p1)
- SUBJECT_ID - De-identified Subject ID (phv00393513.v1.p1)
- SUBJECT_ID - Unique Subject ID (phv00200468.v1.p1)
- SUBJECT_ID - Subject ID (phv00088185.v4.p1)
- SUBJECT_ID - Subject ID (phv00088190.v4.p1)
- SUBJECT_SOURCE - Source repository where subjects'data originate (phv00088187.v4.p1)
- SUBJID - Deidentified Subject's ID (phv00158867.v1.p1)
- SUBJID - Deidentified Subject's ID (phv00088176.v1.p1)
- survival - Survival of patient since symptoms started (phv00158875.v1.p1)
- Treatment:Current treatment - The clinician indicates the treatment that is currently applied (Riluzole, percutaneous endoscopic gastrostomy, non-invasive positive pressure ventilation, tracheotomy, other). (phv00024158.v1.p1)
- TWIN_ID - Twin ID (phv00200472.v1.p1)
- Type of Control:Type of Control - Population/convenience control, spousal control, other control. (phv00024224.v1.p1)
- Zip_Abbrev - First 3 digits of subject's zip code (phv00024168.v1.p1)
- Zip_Abbrev - First 3 digits of subject's zip code (phv00024111.v1.p1)